What is it like to live with Fibromyalgia?


What is it like to live with Fibromyalgia?

I am frequently asked the question ‘What is it like to live with Fibromyalgia?’ and just as often I’m thinking what is it like to not live with it?
When something is part of your everyday live for as long as ‘fibro’ has been in ours (I’m including my family in all of this), life becomes ‘normal’ I would be constantly living in the past if I had to pay attention each individual day and how my life has been impacted.
Living with Fibromyalgia doesn’t mean I spend every moment of my day reliving my diagnosis, it means learning the triggers, how to manage it and finding treatments that suite me and above all constantly picking yourself back up to try again.
Tonight, I am sat here whilst the rest of the house is asleep. My head is spinning ideas after getting more and more uncomfortable the more my body temperature rose. I have however realised one possible answer to that ever so frequent question I hear in the morning “how come you are down here again?” My answer, “I couldn’t sleep”, paying no attention to the actual reason.
One of the most embarrassing problems I face is the constant inability to regulate my own body temperature, tonight lying there with all intentions of sleeping, the temperature began to rise, my fingers began to swell and breathing through my nose became harder as the vessels in my nostrils too decided that they were warm and needed to expand, I then struggle to breathe, I get uncomfortable and the more uncomfortable I get, the warmer I get – and around we go again.
Fibromyalgia - regulating body temperature
Why don’t you open a window I hear you say! That would be a great idea, I love a cool breeze.
Sadly the being unable to regulate the body temperature means extremely particular amounts of covering, the outside can’t be too warm which means that I can’t have the covers on or too cold that they have to be tucked right in at the sides. It’s not always simple – it’s about finding works for you!
So here I am sat on the sofa typing this for you lovely lot to read, with the aim of giving you a little insight to just two of the symptoms of Fibromyalgia – the inability to regulate body temperature and insomnia.
If you think you have symptoms of Fibromyalgia or you been diagnosed and would like to talk about, don’t hesitate to drop me a message or give me a call. Stacey x


  1. I don’t have fibromyalgia but I have a relative that does. I had no idea about the two symptoms you have just talked about. It is interesting to find out what others are going through so we can all be more aware of these issues 🙂 x

    1. Hi Laura

      I’m so pleased to hear that I have raised further awareness for you. Feel free to share my story with your family member.
      You can also find me on Facebook @rollingwiththeglen to find out more about living with fibromyalgia